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| Mural at the RI School for the Deaf |
Thomas Hehir’s 2002 article Eliminating Ableism in Education argues that “ableist assumptions… contribute to low levels of educational attainment and employment” and he offers six proposals toward “overturn[ing] ableist practices” that I’ll list/quote here because I want to remember them!:
"- Include disability as part of a school’s overall diversity efforts. (p. 22)
- Encourage disabled students to develop and use skills and modes of expression that are most effective for them. (p. 23)
- Special education should be specialized. (p. 23) [This does] not mean a different curriculum, but rather the vehicle by which students with disabilities access the curriculum.... Without special education teachers with disability-specific skills, children will continue to lack the skills they need[.]- Move away from the current obsession with placement toward an obsession with results. (p. 25) “We will accept no more segregation.”- Promote high standards, not high stakes. (p. 27) Disability advocates should oppose high-stakes testing.- Employ concepts of universal design to schooling. (p. 28) Universal design [benefits] nondisabled people as well."
Hehir discusses how Section 504 of the Rehabilitation Act of 1971 and the Individuals with Disabilities Education Act (IDEA) prohibited discrimination in education and other settings. (p. 2) I learned about Section 504 in 2016 after being hired by the City of Providence to Direct its Human Relations Commission, and was surprised to find out that I also had the secondary title of Section 504 Coordinator. I had to look it up, and soon understood that I would be looking for ways in which all City Departments were complying with Section 504, from playground design to educational practices and access to government. I had an eye opening experience when one Human Relations commissioner, a paraplegic man named John Gaffney who got around in a motorized wheelchair, offered to take me on a journey through a few blocks of downtown Providence between his condo and City Hall (where we were unable to hold commission meetings because the wheelchair lift was broken). It was frustrating to see how a few inches of curb could prevent him from patronizing a restaurant, or crossing a street in a more convenient or safe place. Astonishingly, at the end of our journey, John brought me to the rooftop of his building to enjoy the view, but he got stuck! There were two elevators but the only one that activated when we pushed the call button was inaccessible due to a single step. I had to get help from the management office to get him down. I only worked for the City for one year, but my crowning achievement was leading the effort to get a new wheelchair lift installed. Now, I see ADA violations everywhere! I get on people about shoveling sidewalks and driveways, who sometimes push back with, “No one is going out in a wheelchair in the snow!” And I’m like, “That’s because people like you don’t shovel well enough – or place your trash barrels conscientiously, or park legally!” Don’t even get me started on the placement of electric rental scooters. I hope more people have experiences like the one John took the time to give me. Once you open your eyes to these barriers, you can’t unsee them.
I was interested in reading “The Education of the Deaf” section of Hehir’s article because I have deaf family members. I grew up with an aunt who became deaf after an early childhood illness and specialized professionally in lip reading and sign language interpretation. (She was even hired by police to lipread for a high profile RI murder case, and someone played her in a dramatic reenactment on the 90s crime show Unsolved Mysteries.) Communicating with Aunt Lena meant that all of us little cousins had to focus on articulating, be sure to face her when speaking, be careful not to interrupt others who were speaking with her, and listen attentively because her speaking voice was less intelligible than the other adults. I don’t recall this being annoying or difficult for any of us, and it’s easy to see how this built better communication skills among the family. My mother told me that Aunt Lena, who had been married to my dad’s deceased brother, attended the RI School for the Deaf, which, in her day – 60s-70s – was more like being institutionalized. Students lived at the school in tiny cell-like rooms and didn’t have much time with their families, as I understand it, though that is not at all the case today. It sounds like Lena’s education compared to the “total communication” Hehir describes (p. 6) that combined speech, lip reading and ASL.
Hehir explains how “the education of deaf children was severely set back by oralism,” which cast aside ASL and prioritized lip reading and speech (p. 6) until “the 1960s, when research began to reveal the benefits of manual communication (Stuckless & Birch, 1966),” which attributed to above average literacy.
My childrens’ donor dad Kurt became deaf due to meningitis when he was about 18 months old. Growing up in rural Maine, Kurt was fortunate to have an outstanding lipreading and speech teacher. Kurt says the decision to not teach him sign language was because he was the only deaf student in a rural seven-town district for his entire K-12 experience. I asked Kurt what he thought about deaf educator Leo Jacob’s assertion that “under the best of circumstances only 30 percent of speech can be read from lip movements.” (Jacobs, 1989) Kurt replied: “I’d agree with 30 percent comprehension from lip reading. For me, the rest is filled in with context and common phrases that enable my brain to put it all together.” Kurt is one of the highest functioning individuals I know, who has never struggled to be gainfully employed, usually in complex leadership roles in historic preservation.
Because Hehir’s article came out before I had a cell phone, and considering how well Kurt can communicate with others via text and email, I imagine that the consequences for deaf students not learning ASL are less impactful in 2025. And 23 years of technological advances means hearing aids and cochlear implants are increasingly available and effective at reducing/eliminating hearing loss – but let’s not take the ableist perspective that deafness should be cured! Kurt is a candidate for a cochlear implant, but he hasn’t pursued it. Sure, there are times when it would be easier for ME if I could pick up the phone and call him, but I can imagine a dozen reasons why Kurt prefers to carry on communicating as he has all his life.

